Great Day to You, Friday Fun Facters!
RIP: Steve Jobs. Apple co-founder & technical visionary, being heralded as this generation’s Thomas Edison & Henry Ford. We dedicate the next song we listen to on our respective iPods to you…
“I want to put a ding in the universe.”
— Steve Jobs
Member Birthday!: Happy Birthday, EddieK! You’re finally beginning to look your age, young man! Continue, always, to Take Hold Of The Flame…
P.S. Sorry, Ed, Ma makes me call you Eddie…
Member Birthday II!: Happy Birthday, MaryAnneM!
She said what am I thinking I must be only dreaming
Or maybe it’s the hundred times he’s crossed my mind
Casual Observer Birthday!: SondaK. Here is to always having the ability to “change your stars.”
We make a special stop today on Friday Fun Fact’s journey on the path to existential happiness. Understand, I am not an expert or have vast experience in the topic we will address today (Special Note I: Right now CarolineH, MarthaS, DavidS, & JenL are marking this admission down on their calendars!), but feel the need to create a bigger, brighter, and “bluer” awareness within our readership in support of those who live with the trials, tribulations, and celebrations of a growing disorder. Today, we address a topic Friday Fun Fact should have written about a long time ago in honor of two of our members, and their family. Most of today’s episode is provided by Hal in celebration of their participation in this weekend’s Autism Walk.
Walk Now for Autism Speaks
Autism is a brain disorder whose membership is growing at an increasing & alarming rate. It strikes at the heart of the Rockwellian visions we have in our heads when we think or dream about having children and families. Your expectations, actions, and tolerances need to change immediately to focus on addressing the additional & extra needs of children with autism. You also, from what I have seen & discussed, need to develop another three to eighteen levels of patience for outbursts, changes in your plans, and communication efforts with autistic children. Despite growing efforts, there is no cure at this time.
We’ll start with the basics
What is autism?
Autism is a general term used to describe a group of complex developmental brain disorders known as Pervasive Developmental Disorders (PDD).
How common is autism?
Today, it is estimated that one in every 110 children is diagnosed with autism, making it more common than childhood cancer, juvenile diabetes and pediatric AIDS combined. Studies suggest boys are more likely than girls to develop autism and receive the diagnosis three to four times more frequently. Current estimates are that in the United States alone, one out of 70 boys is diagnosed with autism. (Chances are, you know someone who is affected by autism).
What causes autism?
The simple answer is we don’t know. The vast majority of cases of autism are idiopathic, which means the cause is unknown. (Since there is no definitive cause, there is no cure).
Light It Up Blue
You may have noticed buildings, bridges, etc., illuminated in blue on April 2nd of this year. This is an effort called Light It Up Blue, by the organization Autism Speaks. Their goal is to get famous buildings, landmarks, etc, bathed in a blue light to further raise awareness. If you are interested, you can see photos of recent lightings at:
If you would like to participate in this next year, it’s very simple. All you need to do is replace a light bulb outside your house with a blue one. You can leave it there for the day, or the entire month of April, which is Autism Awareness Month.
Hal also provided a bit of a different perspective from his personal experiences:
Not sure if there is a way to tie the airline info into this or not. I caught the part about keeping kids under control – in a case like this, it’s much easier said than done. I myself have found I have much more tolerance for screaming kids on a flight b/c I’ve been there & know that sometimes there is a darn good reason. If the child is like Nicky and can’t communicate the problem, they are frustrated and so are the parents. Stares and comments only add to it for everyone – not to say that every screaming kid has an issue.
Hal & his wife Amy are both FFF members. Hal & Amy’s son Nicky “suffers” from Autism (Special Note II: From personal experience, in seeing Nicky run around & command a household, me thinks he “suffers” from nothing!). I cannot give you a detailed report on the day-to-day experiences of living with autism. But I know that Hal & Amy believe that The Man Upstairs gives you nothing more than what you can handle in life. Their plans change according to events that affect Nicky. I do know that Nicky loves horse back riding & putting puzzles together, and continues to grow & learn in school. Hal & Amy always give of their time for the cause. And most importantly, they love Nicky for all that he is and can be…
This weekend is the National Autism Walk – October 9, 2011. I’m not asking you to donate, but just to be more aware.
And if you choose to donate, Nicky’s team name is “Walk It Off.”
Thank you, Hal, for your contribution…
Nicky – thank you for all you are to all of us…
Amy – thank you for babysitting all three kids in Jersey…
Elizabeth – Friday Fun Fact regrets to informyou The Committee refused editorial suggestion to include any Jonas Brothers “lyrics” here within. But we love you anyway…
Ride, Nicky, Ride…
Tunes of the Week:
House of Blue Light – Deep Purple
Solitary Shell – Dream Theater
Shine On – Van Halen
Blue Moon – Toby Keith
True Blue – Madonna
Blue – LeAnn Rhymes
Blue Velvet – Bobby Vinton
Blue Bayou – Linda Rondstat
Blue Suede Shoes – Elvis Presley
Ride, Cowboy, Ride – Bon Jovi
Raise A Giving & Forgiving Glass!
May Your Friday Be Followed By A Saturday, & An Awareness Sunday!
Realizar Sus Ambiciones